Dear friends;
If you been around since my diagnosis of fibromyalgia, I’m sure you realize that I am not the same as I used to be. I’m guessing you have noticed that I am no longer the go-getter I used to be and no longer deeply involved with the children at church, as a matter of fact, I’m not even at church every time the doors open. I walk with a cane and tire very easily. At home, I have to leave a lot of the daily chores to my husband. This is all much to my disappointment but it just cannot be helped.
Simple Things I No Longer Do
Today, though, I thought I might share about some of the simple things you may not realize that I can no longer do since my diagnosis. Here are some of those simple things that most of us take quite for granted.
Wear a hat or pretty barrettes in my hair.
Anything that might pull my hair or put pressure on my head causes a lot of pain for me now. Have you ever put your hair in a tight ponytail and then later when you took it down you scalp hurt? This is me all the time. Some days are not as bad as others, but for the most part, anything in my hair or on my head is a no-no.
Open a bottle of water or coke.
“Can you open this, please?
Those little ridges on the bottle cap are little needles poking into my hand when I try to open a bottle, especially the first time breaking the seal.
Walk across the floor in my bare feet.
Walking in my bare feet, at times is like walking on a bed of nails. Or worse, little a bed of needles. Can’t wear the socks with slip grids on them either. Each grid causes great pressure or pain on my feet. Lately even the fuzzy socks have been an issue. They feel like walking on a dirty kitchen floor in your bare feet. I had a pair of sandals once with ridges inside the soles. Oh, my, It was just impossible to walk in them.
Don’t mean to overwhelm you. Just trying to help you understand why I no longer do things I used to do. I hate it really cause my brain says, “Hey, let’s do this” but my body says, “NO!” My mind knows these are simple things to do, but no longer for me.
Thanks for listening and understanding,
I’m a Member of Fibro Bloggers Directory
Pastor’s Wife (retired) & Chronic Pain Warrior blogs about how to make it through anything by relating her own life experiences to her writing. She is passionate about her love for the Lord and desires to spread that passion to others. She has a great desire to encourage women who are following behind her.
I’m so sorry you’ve found these things intolerable, especially with wearing a hat given as that it’s so cold (I can wear a hat okay, which is lucky because I struggle a lot with the cold).
With what you said at the end… I find that one of the most annoying parts about fibro, with my brain wanting to do things that my body simply doesn’t want to and can’t. Thank you for so openly sharing these things xxxx
Thank you Mandy for being so open about what you are going through. I am visiting from the 31 days linkup. I hope you have a great weekend!
Luckily, I live in south Georgia, so cold isn’t too much of an issue. And then a scarf can do the trick.
And Yeah, it’s frustrating when I want to do the things I have done all my life and I just can’t. Then again, Part of this comes with just plain old “old age”
Thanks for coming by.
My goal is to try and gently share with people to help them understand my dilemma. Those who have known me a long time, know me as someone who is always on the go, with invisible illnesses like fibromyalgia, it’s hard for “regular” folks to understand my lack of participation sometimes. Thanks for coming by!
Oh sweetie, I am so sorry you are going through this. You have done a wonderful job of expressing how you feel and it allows others to gain a new level of understanding and compassion.
Blessings as you continue to share. Here’s a great big HUG!!!!
Love,
Karen
Karen,
Thanks for coming by! I’m learning how to deal with the issues but it can be disheartening at times.
Remember only soft hugs!
Mandy
Mandy, thanks for sharing. It helps people understand more, I think, when we are open and candid about these issues. I know it must be hard sometimes to no be able to do simple things you’ve done before. I pray you will find comfort as you maneuver this road of Fibro. Blessings to you!
Thanks, Gayle, my goal is to write open and honestly, like talking with my sister or best friend. Trying to help others understand. Thanks for reading.
I’m so sorry that you are having to give up doing so many things that –as you pointed out– so many of us take for granted! Thank you for sharing though because it reminds us to be grateful and also to be aware of how far-reaching living with illness and limitations can go!
Thanks for stopping by Karilee. I’m glad that this can help folks become more aware. It’s difficult to share sometimes because I don’t want to sound whiny and I also know that some suffer a lot more than I do. But God has taught me a lot through this trial.