Once I finally had a diagnosis, I was able to get on a regimen of Savella. This relieved the majority of my pain. At least I was able to move about. We started working on reducing my 40mg of prednisone down to a more acceptable level. This was no easy feat. The pain would return with just a slight decrease. If I remember, we had to reduce by 5 mg, and then later only 1 mg. (I only recently was able to get completely off the usage of prednisone. It took me ten years!)
It’s Off to the Orthopedic Surgeon
But it only took a few months for my knees to begin to swell and be painful. So, we headed to Hughston Clinic. After x-rays and MRIs, the doctor determined that I had a torn meniscus. So we scheduled surgery. How wonderful that Dr. Collins is a Christian. By his request, he had prayer with me before we went into the OR. His staff is amazing. They checked on me several times after the surgery. I highly recommend Hughston Clinic if you live in SW Georgia.
The surgery went well, he was able to repair damage and clean out a lot of arthritis. He took pictures that showed a lot of gnarly mess. So when we met with him again, he said he would send me back to Mayo Clinic because he wasn’t certain that it was just osteoarthritis.
Back to Mayo Clinic
Already established at Mayo, it wasn’t as difficult to get an appointment. I saw my rheumatologist. He looked at the pictures and said, “This is severe osteoarthritis”. OK. No Surprise here. I was very accident-prone on the dairy farm. As a child, I was always incurring stupid injuries that weren’t too severe. I figured then that one day, I would have plenty of arthritis.
While he felt the diagnosis for knees was osteoarthritis, he decided to run the tests for rheumatoid arthritis again. Low and behold, this time it came back as R.A. We had caught it early so I was able to take Methotrexate rather than a biologic.
Why Didn’t It Show Up Before?
Apparently, the prednisone was masking the RA. I had been concerned this would be a problem all along. The steroid helped me “feel” pretty darn good, But in fact, steroids are an anti-inflammatory drug. So the numbers in the blood work came back good. I figured the steroids caused my numbers to be all over the place when I was tested back home.
The Methotrexate has kept the RA pretty much under control these 10 years. Osteoarthritis of the knees continues to be aggravating on a daily basis. Other fibromyalgia pains and other issues keep popping up now (10 years later). So, we are considering other medication options.
This brings us up to the Spring of 2013. Stay tuned for another addition to Mandy’s Journey with Pain or click here to see what you may have missed.
-Mandy
Pastor’s Wife (retired) & Chronic Pain Warrior blogs about how to make it through anything by relating her own life experiences to her writing. She is passionate about her love for the Lord and desires to spread that passion to others. She has a great desire to encourage women who are following behind her.
Oh this journey with pain can be such a roller coaster! Thank you for sharing your story, and bringing encouragement to us, your fellow pain-warriors. Thank God for His mercy in every hard place!
These knees have been waiting for me to turn 60 to have a replacement. I’ll be 60 this fall. Gotta get the foot problem solved first! Thanks for coming by.
That’s amazing that you’ve got an in to the Mayo clinic. I’m so glad they were able to pinpoint the problem.
I am soooo thankful for Mayo Clinic. They have been a lifesaver for me. I was initially referred to them in 2011 when my pain first started. It took about 4 months to actually get there but when I did they were very thorough. The place is amazing. Have you seen the documentary on PBS? awesome!
Thank you Mandy for sharing your journey with us. I hope you have a wonderful day!